Cystinosis is life changing. I've written multiple posts detailing all the ways in which cystinosis completely threw our lives for a loop and there's no denying that it leaves its mark on everyone involved. After the initial shock and general craziness of those first early years started to even out, the idea that I might… Continue reading Supportive Tattoos for Cystinosis
Elsinosis: Living with Cystinosis 