Elsinosis: Living with Cystinosis
A real life account of beautiful Elsie and how she lives with cystinosis
Cystinosis is life changing. I've written multiple posts detailing all the ways in which cystinosis completely threw our lives for a loop and there's no denying that it leaves its mark on everyone involved. After the initial shock and general craziness of those first early years started to even out, the idea that I might… Continue reading Supportive Tattoos for Cystinosis
One of the things that has made a huge difference for Dave and I when it comes to coping with Elsie's diagnosis is the overwhelming support that we've received from our friends and family. After being told that Elsie had Cystinosis we were a little hesitant to talk to anyone about it. She wasn't yet… Continue reading Finding Support
Elsinosis: Living with Cystinosis 