Other Writings

The Mighty
My Daughter’s Rare Genetic Disease Taught Us the Meaning of Strength
When a Book Called My Daughter’s Rare Disease ‘Useless Information’
How My Sister Helped Us the Day Our Daughter Was Diagnosed
Why Canada Needs Your Support on Rare Disease Day
6 Lessons I’d Like to Share With Parents New to Cystinosis
What I Learned by Not Keeping Silent About My Daughter’s Cystinosis
When I Overcame a Lifelong Fear to Advocate for My Daughter with Cystinosis
Making Cystinosis Cool with Comic Books

The Love Letter Project
Dear Parents of a Newly Diagnosed Child

The Good Mother Project
The Eternal Love of a Mother
How My Daughter’s Rare Disease Taught Me to Care for Myself
Most Days I Didn’t Even Like Her
Drop the Clichés Please
She Saved Me
More Than Just a Costume

Coffee + Crumbs
As Long As It’s Healthy.

My Two Little Honeys

Patient Worthy
Mother of Little Girl With Cystinosis Describes Being a Rare Mom
Cystinosis Support for Your Family

Tribe Magazine
The Pressure to be a Domestic Goddess
The Heartbreak of a Picky Eater

Break The Parenting Mold
5 Reasons Why Raising a Child with a Medical Condition is Kind of Incredible
As Long As It’s A Healthy Baby
Advice for New Special Needs Parents

Spill It Mom
Dear Mom On The Day Motherhood Changed

The MAMAS Project
November 2016 Feature