Social Media Graphics
Websites
USA
Cystinosis Research Foundation
Cystinosis Research Network
Cystinosis Foundation
UK
Cystinosis Foundation UK
Cystinosis Foundation Ireland
Australia
Australian Cystinosis Support Group
Netherlands
Cystinose Groep Nederland
Germany
Cystinose Selbsthilfe e.V.
Italy
Associazione Cistinosi
Brazil
Grupo de Suporte à Cistinose Nordeste do Brasil
Videos
CRF 2014 Hope Through Research
Day in the Life with Cystinosis
Living with Cystinosis: A Closer Look
Know Cystinosis Whiteboard Animation
What is Nephropathic Cystinosis
Support Groups
Cystinosis Family Canada – Famille cystinose Canada
Parents Of Children With Cystinosis Support
Cystinosis Family
Handouts
Cystinosis Reseach Network: Cystinosis Parent Handbook
Cystinosis Foundation: Nephropathic Cystinosis
Blogs
Sam and Lars: A great blog that follows two boys with cystinosis
A Happy Girl: An amazing, positive blog written by a woman and mother living with cystinosis
The Bright Side of Everything: Another great blog written by a women living with cystinosis who celebrates the beauty in every day
Elsinosis: Living with Cystinosis 
Hi my 3 and a half year old little boy has just been diagnosed with Cystinosis, I don’t really know an awful lot about it. I would be very grateful if someone living with this condition or a parent to someone with it could contact me via email, thank you, Jamie
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