Lifestyle

My Daughter’s Disease is Not Useless Information

Recently a family in the cystinosis community made a shocking and upsetting discovery this past week in something that I'm assuming was meant to be a light hearted gift. We've all seen those bathroom books before, usually full of strange, little known facts meant to elicit a few chuckles. So when I saw a picture… Continue reading My Daughter’s Disease is Not Useless Information