Elsinosis: Living with Cystinosis
A real life account of beautiful Elsie and how she lives with cystinosis
My little girl is now 2 years old! I can't believe how fast time is going, it feels like only yesterday Dave and I found out we were pregnant. I still remember the fear I felt on our first car ride home from the hospital. Does everyone in this city drive like a lunatic? Don't… Continue reading She’s 2!
One of the things that has made a huge difference for Dave and I when it comes to coping with Elsie's diagnosis is the overwhelming support that we've received from our friends and family. After being told that Elsie had Cystinosis we were a little hesitant to talk to anyone about it. She wasn't yet… Continue reading Finding Support
Elsinosis: Living with Cystinosis 