Cystinosis? What the hell is cystinosis? Elsie was born a bright, beautiful and large baby girl (8lbs 11oz) who immediately made everyone that met her fall in love. As our first child, Dave and I were in for a sharp learning curve. You mean she needs help to fall asleep? But by 2 months we… Continue reading Finding Out About Cystinosis
Elsinosis: Living with Cystinosis 